Links & News articles

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Dr. Ruth Myers & Dr. Scott Davies 2019

Spontaneous cerebrospinal fluid leak is a rare cause of headache, resulting in debilitating neurological effects

Kranz, PG, Gray, L & Amrhein, TJ 2018, ‘Spontaneous Intracranial Hypotension: 10 Myths and Misperceptions’, Headache: The Journal of Head and Face Pain, vol. 58, no. 7, pp. 948–959.

D. Wilhour M.D.

Assistant Professor of Neurology, University of Colorado Anschutz Medical Campus

Brain Foundation urging awareness of often under-diagnosed cerebrospinal fluid leaks - Jasime Hines, 2022

• Danya Hodgetts spent four years trying to get a diagnosis for her spinal fluid leak
• The condition causes headaches and other neurological symptoms
• The Brain Foundation says while the condition is rare, more community awareness is needed

Epidural Basics: What they are and why they fail

A talk by Dr. Ian Carroll on “Epidural Blood Patch Basics” at the Bridging the Gap Conference on November 11, 2023, presented by the Spinal CSF Leak Foundation in partnership with the University of Colorado Anschutz Medical Campus.

Spinal Cerebrospinal Fluid (CSF) Leak

"Unfortunately, this condition and the symptoms that accompany it can often be misdiagnosed as migraine, sinusitis, tension headache, post traumatic headache and the new enitity of chronic daily persistent headache, especially in the case of spontaneous CSF Leaks. Over time the positional nature of the symptoms can diminish and further contribute to misdiagnosis."

The 'headache from hell' that was a sign of something more serious

Dr. Norman Swan - Host

Dr. Scott Davis - Neuroradiologist, Neurological Intervention and Imaging Service of Western Australia

Sophie Mickel - Patient

Andrea Buchanan lost her mind while crossing the street one day. Suffering from a horrible cough, she inhaled the cold March air, and choked. She was choking on a lot that day. A sick child. A pending divorce. The guilt of failing, as a partner, as a mother. Relieved when the coughing abated, she thought it was over. She could not have been more wrong. 

Many people who suffer with chronic migraine live with symptoms that are mysterious, unexplained, and undiagnosed — headache, nausea, neck stiffness, ringing in the ear — and all of these symptoms worsen as the day goes on and the individual spends more time in the upright position. However, symptoms improve as long as they are lying down. Such patients may be diagnosed with POTS, Chiari, chronic migraine, new daily persistent headache (NDPH), or even concussion. Ian Carroll, MD, discusses an often-overlooked diagnosis that can be effectively treated — spontaneous intracranial hypotension (CSF leak).