An Australian charity aiming to
create a brighter future for people experiencing
Spinal Cerebrospinal Fluid (CSF) Leak
Our Purpose
To improve quality of life for people with spinal CSF leaks through improved access to timely, effective, and supportive care in Australia.
CSF Leak Association UK
Chronic Headache Mystery – Hidden Stream: The Untold Story of a CSF Leak
This documentary follows Dr. Bern Hard’s journey through a spinal CSF leak, a debilitating yet treatable condition that remains widely under-recognised. Through personal experience and expert insight, the film exposes the urgent need for earlier diagnosis, equitable access to care, and full implementation of the UK consensus guidelines. Why This Matters Spontaneous Intracranial Hypotension (SIH) must be treated as a medical emergency, not a rare curiosity.
How you can help….
Spinal CSF Leak Australia is an entirely volunteer-run charity operating on minimal funding. If you would like to donate your time and use your experience in helping us achieve our Purpose, please either see our Positions Vacant or complete the Skills Survey.
Registered Charity
Your donation to Spinal CSF Leak Australia helps our vital work supporting people affected by spinal cerebrospinal fluid (CSF) leaks. As a volunteer-run registered charity with Deductible Gift Recipient (DGR) status, all donations over $2 are tax-deductible. Every contribution—large or small—directly supports the essential costs of running the charity, such as insurance, website hosting, and compliance, while also funding future awareness and education initiatives. By donating, you’re helping us raise the profile of this under-recognised condition, improve access to diagnosis and treatment of people living with spinal CSF leaks across Australia.
