Established in 2014, the Spinal CSF Leak Foundation based in the US, offers comprehensive information to both read and watch regarding spinal CSF leaks and other related conditions.
Started by a group of leakers, they created a website to share information about CSF leaks. It has grown into registered charity and a valuable voice in raising awareness of CSF leaks both in the UK and across the world.
Australian and New Zealand patients can connect with current and previous people with CSF leaks for support and information.
Spinal CSF Leak Support Community in Partnership with Spinal CSF Leak Foundation
The Canadian charity promoting awareness of Spinal CSF leak.
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