An Australian charity aiming to
create a brighter future for people experiencing
Spinal Cerebrospinal Fluid (CSF) Leak
An Australian charity aiming to
create a brighter future for people experiencing
Spinal Cerebrospinal Fluid (CSF) Leak
Our Purpose
To improve quality of life for people with spinal CSF leaks through improved access to timely, effective, and supportive care in Australia.
Join Our Team
Help Grow Spinal CSF Leak Australia
Spinal CSF Leak Australia is a registered charity representing Australians affected by spinal cerebrospinal fluid leaks. Our mission is to raise awareness, support patients and families, and advocate for improved diagnosis, treatment, and research.
We’re looking for skilled volunteers to help strengthen our organisation.
Lived Experience Survey
The University of Melbourne
Researchers at The University of Melbourne are conducting an online survey and interview study to understand the lived experience of people with spinal CSF leak in Australia and New Zealand. This survey is now closed. Thank you for your participation. For information regarding this research project, please click the link below.
Registered Charity
Your donation to Spinal CSF Leak Australia helps our vital work supporting people affected by spinal cerebrospinal fluid (CSF) leaks. As a volunteer-run registered charity with Deductible Gift Recipient (DGR) status, all donations over $2 are tax-deductible. Every contribution—large or small—directly supports the essential costs of running the charity, such as insurance, website hosting, and compliance, while also funding future awareness and education initiatives. By donating, you’re helping us raise the profile of this under-recognised condition, improve access to diagnosis and treatment of people living with spinal CSF leaks across Australia.