A new Australian charity to help
create a brighter future for people experiencing
Spinal Cerebrospinal Fluid (CSF) Leak
A new Australian charity to help
create a brighter future for people experiencing
Spinal Cerebrospinal Fluid (CSF) Leak
Lived Experience Survey
The University of Melbourne
Researchers at The University of Melbourne are conducting an online survey and interview study to understand the lived experience for people with spinal CSF leak in Australia and New Zealand. You can see the advertisement through the link below. Any queries can be directed to Dr Bao Nguyen, Project Supervisor, on (03) 9035 8553 or bnguyen@unimelb.edu.au
INTRACRANIAL HYPOTENSION CONFERENCE 2025 AMSTERDAM
This year's Intracranial Hypotension Conference will be taking place June 28-29, 2025 in Amsterdam, hosted by Cedars-Sinai, Duke University, University of Freiburg, and University of Amsterdam. The conference will discuss the latest advances in the diagnosis and management of Spontaneous Intracranial Hypotension (SIH) and other CSF leak disorders.
The two-day program covers a wide range of topics, including clinical presentation, diagnostic techniques, treatment modalities, controversies in management, and international cooperation in research and treatment.
The US Spinal CSF Leak Foundation is proud to support this conference with an educational grant. Registration is available for both in-person or virtual attendance. Register via the link below.
Our Vision
To improve the quality of life of people with Spinal CSF Leaks and Intracranial Hypotension in Australia through improved access to timely, effective, and supportive care.
Registered Charity
Spinal CSF Leak Australia is a volunteer-run registered charity through the ACNC and has Deductible Gift Recipient (DGR) status with all donations over $2 eligible for a tax deduction.
All funds go towards the on-going expenses associated with running a charity (insurance, website hosting, etc.) and future awareness raising initiatives.