A new Australian charity to help
create a brighter future for people experiencing
Spinal Cerebrospinal Fluid (CSF) Leak
A new Australian charity to help
create a brighter future for people experiencing
Spinal Cerebrospinal Fluid (CSF) Leak
Lived Experience Survey
The University of Melbourne
Researchers at The University of Melbourne are conducting an online survey and interview study to understand the lived experience for people with spinal CSF leak in Australia and New Zealand. You can see the advertisement through the link below. Any queries can be directed to Dr Bao Nguyen, Project Supervisor, on (03) 9035 8553 or bnguyen@unimelb.edu.au
Our Vision
To improve the quality of life of people with Spinal CSF Leaks and Intracranial Hypotension in Australia through improved access to timely, effective, and supportive care.
Registered Charity
Spinal CSF Leak Australia is a volunteer-run registered charity through the ACNC and has Deductible Gift Recipient (DGR) status with all donations over $2 eligible for a tax deduction.
All funds go towards the on-going expenses associated with running a charity (insurance, website hosting, etc.) and future awareness raising initiatives.