Goals and Objectives

•   Understand, capture and communicate the lived experience of those with a Spinal CSF Leak 

• Increase healthcare professionals’ knowledge of Spinal CSF Leaks including the importance of early diagnosis and treatment and clinical care pathways

• Provide comprehensive, evidence-based information and education to empower people with Spinal CSF Leaks and their support network to be active participants in their treatment and recovery

• Create a strong support network for Spinal CSF Leak patients and their families, offering emotional support and practical assistance

• Advocate for improved access to healthcare resources, treatment options, and patient rights

• Collaborate with medical specialists and researchers to advance knowledge and treatment options for CSF leaks

•  Organise fundraising efforts to secure the necessary funds for all these activities and initiatives

• Foster partnerships with healthcare professionals, patient advocacy groups, and government agencies to achieve common goals in CSF leak prevention and treatment.