Patient stories
Stories of hope and recovery from a spinal CSF leak.
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Abby’s Story
Trust Yourself: My Spinal CSF Leak Journey On January 1st, 2025, I woke up full of New Year’s good intentions—restart the job search after a recent redundancy, continue my fitness journey, and maybe even tackle a full spring clean. But instead of renewed energy, I had a pounding headache and nausea that didn’t make sense.…
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Monica’s Story (7 min read)
This is my personal journey of dealing with a spinal CSF leak, from the initial incident to recovery. Key Points Initial Incident: The spinal CSF leak likely resulted from a minor car accident, exacerbated by bone spurs on the spine, leading to severe pain and other symptoms caused by a hole in the dura, leaking…
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Nicole’s Story
My symptoms started in 2022 when I was in my late 40’s. There was no accident or injury, but suddenly my balance was ‘off’. I’d stand up and feel wobbly, or sit down and nearly miss the chair, which I thought was strange but not too concerning. Then I experienced my first episode of vertigo…
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Michelle’s Story
Summary: From headache onset to blood patch in 4 weeks. My Roller‑Coaster Ride Through a Spontaneous CSF Leak Christmas holidays should have been all mince pies and Michael Bublé, yet there I was in the city with my daughter nursing a headache only two Nurofen deep. I rarely get headaches, so this was bizarre—and getting…
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ABC News: Cerebrospinal fluid leaks cause painful headaches
When retired nurse Rose Kruze started suffering from debilitating headaches she had no idea they were a symptom of something more sinister. A retired Townsville nurse suffering from debilitating headaches has received a procedure to fix a fluid leak in her spine. Intracranial hypotension affects an estimated five in 100,000 people but doctors believe it…





